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Links of Interest
Muscular
Dystrophy Canada
Families
of Spinal Muscular Atrophy (FSMA)
Ilsa's
Previous Website
(some links are not active)
Global
TV Profile on Ilsa
(Quicktime Requred)
Request
for Support Letter
Ilsa
Photos
Walk for MDC
Edmonton 2010
Watch
the Site for Further Details
Ilsa
Mae Research Fund
Total Raised to Date
First
Goal of
$100,000 Reached
To donate to the fund, click the MDC
Logo above, and fill in the appropriate info. Under Fund, choose Research
and in the comments box make reference to the Ilsa Mae Research Fund.
Thank-you!
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 Ilsa
Mae,
was an angel. She had an angelic personality, laugh and smile. In her
short span of time on this earth, she had earned her wings by bringing
a bit of joy to everyone she met. This angel was with us for a limited
engagement due to a rare neuromuscular killer, Spinal Muscular Atrophy
(SMA).
On May 18, 1998, this little angel arrived. After a few hectic weeks
with a new baby, thoughts turned to all she could accomplish. Dad was
hoping to watch her excel at golf, baseball and hockey. Mom planned
to introduce her to running and tap dancing.
When Ilsa reached the age of four months, this angel was not yet able
to lift her head, roll over, or do much more than wiggle her toes, but
everyone thought she was just setting her own timetable. At six months,
Ilsa was diagnosed with SMA.
Ilsa was not expected to be here for her first birthday. Her first birthday
came and went along with here second Christmas. On March 28, 2000 Ilsa
passed away peacefully while watching Bear in the Big Blue House,
just a few months short of her second Birthday. This little angel endured
much in her short life without complaint.
Ilsa, our little angel, continues to touch many people lives as she
teaches them how precious life is.
Ilsa's Research Fund
In
late 2005, our family and the Environmental
Services Association of Alberta (ESAA), through MDC created the
ILSA MAE RESEARCH FUND.
This
fund has the specific goal of supporting SMA research in Canada. Money
raised for Muscular Dystrophy Canada at ESAA Events are donated to this
fund.
Since
the inception of the fund, over $100,000 has been raised to support
SMA Research.
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