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Angel came down from heaven yesterday

stayed with me long enough to rescue me

And she told me a story yesterday

about the sweet love between the moon and the deep blue sea

Then she spread her wings high over me

she said she’s goin' now, come back tomorrow

And I said, "Fly on my sweet angel, fly on through the sky Fly on my sweet angel tomorrow I’m gonna be by your side" Fly away, high away, fly away

- J. Hendrix

Resources | News


About Spinal Muscular Atrophy - Resources

Muscular Dystrophy Canada
The Muscular Dystrophy Canada is a national voluntary agency incorporated in 1954 by a group of parents and friends of children with Duchenne muscular dystrophy.

MDA - USA
The Muscular Dystrophy Association is THE source for news and information about 40 neuromuscular diseases, MDA research and services for adults and children with neuromuscular diseases and their families.

Families of SMA - Canadian Chapter
Families of SMA is a non-profit, tax-exempt organization, founded for the purposes of encouraging support and raising funds to promote research into the causes and cure of Spinal Muscular Atrophies.

Families of SMA
Families of SMA is a non-profit, tax-exempt organization, founded for the purposes of encouraging support and raising funds to promote research into the causes and cure of Spinal Muscular Atrophies.

Jennifer Trust for Spinal Muscular Atrophy
The Jennifer Trust for Spinal Muscular Atrophy was founded in 1985 as a support group for people with SMA and for their families. Since then it has grown to have over 1,200 families as members, and to be in contact with groups and families all around the world.

Our SMA Angels
A Special Tribute to children that have suffered from Spinal Muscular Atrophy.

Believe in Miracles

Theo's Story

Fight SMA
This is a national organization committed to accelerating a cure for spinal muscular atrophy (SMA), the number-one inherited killer of children under two. Howie Long is the Honorary Chairman.

Fight SMA with Torries Buddies
Tori's Buddies is a Registered Canadian Charity dedicated to the international fight against Spinal Muscular Atrophy, the number one inherited cause of death among children under the age of two.

Melissa's Page on Spinal Muscular Atrophy
A good site with lots of information.

Discovery Toys
Great Toys for all kids. Some toys work great for kids with limited movement.

Snuglbuds
Speciality support systems for infants and children. Check out the Travelbud and the Butterfly Pillow.

Enabling Devices
a division of Toys for Special Children, Inc., is a company dedicated to developing affordable learning and assistive devices to help people with disabling conditions. Toys for Special Children has been creating innovative toys and switches for many years.

Sunrise Medical
Makers of the Kid Cart. It's Awesome !!!

FSMA - Links to Related Sites
An amazing list of websites from assistive technologies to wheelchairs.