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Angel
came down from heaven yesterday stayed with me long enough to rescue me
And she told me a story yesterday
about the sweet love between
the moon and the deep blue sea
Then she spread her wings high over me
she said she’s goin' now, come back tomorrow
And I said, "Fly
on my sweet angel, fly on through the sky Fly on my sweet angel tomorrow I’m gonna
be by your side" Fly away, high away, fly away -
J. Hendrix
Resources
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About
Spinal Muscular Atrophy - Resources Muscular
Dystrophy Canada The Muscular Dystrophy Canada is a national
voluntary agency incorporated in 1954 by a group of parents and friends of children
with Duchenne muscular dystrophy. MDA
- USA The Muscular Dystrophy Association is THE source for
news and information about 40 neuromuscular diseases, MDA research and services
for adults and children with neuromuscular diseases and their families.
Families
of SMA - Canadian Chapter Families of SMA is a non-profit,
tax-exempt organization, founded for the purposes of encouraging support and raising
funds to promote research into the causes and cure of Spinal Muscular Atrophies.
Families of SMA
Families of SMA is a non-profit, tax-exempt organization, founded for the
purposes of encouraging support and raising funds to promote research into the
causes and cure of Spinal Muscular Atrophies. Jennifer
Trust for Spinal Muscular Atrophy The Jennifer Trust for Spinal
Muscular Atrophy was founded in 1985 as a support group for people with SMA and
for their families. Since then it has grown to have over 1,200 families as members,
and to be in contact with groups and families all around the world. Our
SMA Angels A Special Tribute to children that have suffered
from Spinal Muscular Atrophy. Believe
in Miracles Theo's
Story Fight
SMA This is a national organization committed to accelerating
a cure for spinal muscular atrophy (SMA), the number-one inherited killer of children
under two. Howie Long is the Honorary Chairman. Fight
SMA with Torries Buddies Tori's Buddies is a Registered Canadian
Charity dedicated to the international fight against Spinal Muscular Atrophy,
the number one inherited cause of death among children under the age of two.
Melissa's
Page on Spinal Muscular Atrophy A good site with lots of information.
Discovery
Toys Great Toys for all kids. Some toys work great for kids
with limited movement. Snuglbuds
Speciality support systems for infants and children. Check out the Travelbud and
the Butterfly Pillow. Enabling
Devices a division of Toys for Special Children, Inc., is a
company dedicated to developing affordable learning and assistive devices to help
people with disabling conditions. Toys for Special Children has been creating
innovative toys and switches for many years. Sunrise
Medical Makers of the Kid Cart. It's Awesome !!!
FSMA
- Links to Related Sites
An amazing list of websites from assistive technologies to wheelchairs.
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